Omarni’s update
Omarni was just a year old when he was diagnosed with Acute Lymphoblastic Leukaemia in April 2018. His mum Naomi had become increasingly alarmed by his enlarged lymph nodes, a cold from which he took a long time to recover, and a rash that spread to his neck and chest. In hospital, her worst fears were confirmed.
Omarni began chemotherapy and steroid treatment immediately. It has been a rollercoaster journey ever since. An infection on his brain left him in hospital for six months, with his chemotherapy on hold. He also suffered a seizure and later, while in hospital, he slipped in the shower, leaving him with a crack on his skull and a bleed on the brain.
By the end of 2020, it was clear that the treatment had not worked as effectively as hoped, and after a match was found in the US, Omarni received a stem cell transplant.
Following a period of recovery, Omarni is doing really well. He has increased his hours at school, is trying new foods and has had his Hickman line removed. It’s now almost a year since his transplant and the future is looking so much more positive.
Sayuri
Sayuri was so delighted to receive her warmable teddy. She loves cuddling her soft toys and never goes to hospital without them.
Audrey
Still undergoing chemotherapy, with all the expected side effects. Her warmable teddy bear brings much-needed comfort when she’s feeling a bit down or tired.
Esme
Esmé was delighted to receive her soft, cuddly bear. It arrived on her birthday, which falls just before Christmas, making it an extra-special present.
Omarni
Omarni is doing really well and has had his Hickman line removed. It’s now almost a year since his transplant and the future is looking so much more positive.